Call for abstracts

Call for abstracts

4S/EASST 2016 Conference (Barcelona) – http://www.sts2016bcn.org/

 

Track: Biomedical sharing economies

Convenors: Mauro Turrini & Lorenzo Del Savio

 

Digital technologies are reducing the cost of production and sharing of bio-data, stimulating new approaches to healthcare and biomedical research. On one hand, personal data may be adopted as a means to devise more precise strategies to diagnose, prevent, and treat diseases, even bypassing the medical mediation. On the other, non-professional citizens are recruited for research tasks such as data and sample collection, data coding, and problem solving in data-intensive large scale biomedical projects, which are complementing, and in some cases competing with, experiment-based approaches. An increasing number of crowdsourcing internet platforms, such as PatientsLikeMe, OpenHumans, Personal Genome Project, aggregate participants to generate biomedical datasets, often framing “lay” participation in terms of patient empowerment, healthy citizenship, research activism, or altruistic sharing, in line with other forms of contemporary sociality. Some of these platforms embody new forms of valorisation that put at work patients and healthy volunteers.

This track session explores issues of patient empowerment, biodata ownership, privacy and control in these biomedical sharing economies. The aim is to expound their potential for making healthcare and biomedical research more inclusive, broadening healthcare and scientific citizenship, and deepening democracy as well as their capacity of furthering exclusion and creating new hierarchies and forms of exploitation. We seek papers that address questions pertaining expectations, motivations and experiences of the relevant actors, including whether and how their values and beliefs enter research agendas, as well as more theoretical papers engaging with the political economy of these platforms.

If you have any questions regarding the panel, please feel free to contact Mauro Turrini mauro.turrini@univ-paris1.fr or Lorenzo Del Savio lorenzo.delsavio@iem.uni-kiel.de .

All abstracts should be submitted through the conference website: http://www.sts2016bcn.org

DEADLINE: 21st February 2016.

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s