The Data & It in Health and Medicine Lab (see previous post) has published an article on the emerging ethical issues regarding digitale health data. These are also issues of great relevance for citizen science projects aiming at the establishment of bio-datasets.
Link. Croatian Medical Journal
Emerging ethical issues regarding digital health data. On the World Medical Association Draft Declaration on Ethical Considerations Regarding Health Databases and Biobanks
Christine Aicardi, Lorenzo Del Savio, Edward S. Dove, Federica Lucivero, Niccolò Tempini, Barbara Prainsack CMJ 2016; 57: 207-13