Now out: “Every Participant Is a PI. Citizen Science and Participatory Governance in Population Studies”

Alena Buyx, Lorenzo Del Savio , Barbara Prainsack, Henry Völzke recently published their article “Every Participant Is a PI. Citizen Science and Participatory Governance in Population Studies” in the International Journal of Epidemiology

Abstract: The willingness of people to participate in population-based studies has been declining for decades and is likely to continue to do so.1,2Recently, large-scale cohort studies even had to be aborted due to poor recruitment.3 Although the use of online tools can boost recruitment in some contexts, attrition remains a big problem for such studies.4,5 This situation is deeply concerning for epidemiological research. The effects of poor recruitment and high attrition are poor statistical power and an exacerbation of selection bias, which in turn diminishes the representativeness of population-based samples. For example, the disproportionate reduction in participation of people with low socioeconomic status (SES) could have significant impact on the validity of study results, since one of the most robust findings of contemporary epidemiology…

Read the full article at: https://www.ncbi.nlm.nih.gov/labs/articles/28100583/

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